Stevie Stats:
Weight - 5 lbs 8 oz (a big weight gain)
It's been a big weekend. They have taken Stevie off caffiene, and they removed one of the sensors that monitors the oxygen level in her blood. This sensor is the one that alerted us to when Stevie was having desat's. Since she has been having desats primarily with feedings they removed the monitor - her heart rate was not dropping when she desat'd so they felt confident to remove it. I was nervous because rely on this monitor to know what is happening with her oxygen levels. They still have her hooked up to the monitor to see her heart rate and breathing rate.
Now when we are feeding her we have to pay close attention to her coloring, and if she starts to turn a little blue-ish we know she needs to stop, take a break, and breathe to catch up.
So between taking her oxygen nose tube off last week, and taking the pulse-oxygen monitor off - last week was big in many ways. It's really making us lean on faith knowing she's okay, without a monitor confirming this. We know the nurses are keeping a close eye on her at all times too.
She really is doing amazing and I know it's because God is answering our prayers and getting her through this time. She is now up to 4 bottle feeds a day and up to 50ml per bottle. She is about 75% on these bottle feeds right now. It's exhausting for her to get through these, so now that we're piling them on she's super tired. She can do it though. It won't be long now before she can come home - if she continues to progress and do great she could be home in 2 weeks!!
Thank you again for the prayers, support, and kind notes & emails. It means the world to us.
Much love,
Erin
2 comments:
She is truly one of God's little angels on earth -- growing and developing her own spunky little personality -- she uses her hands to let everyone know what she does not like - it is very obvious when she wants you to stop messing with her - already a strong Hickman/Morris woman, i like that -- She is so pretty and getting stronger day by day - i am so thankful for the love and blessings God has showered on our little granddaughter. love, Grammy
We are just so in love with you. Sweetness you get to head home soon. HOME SWEET HOME. Stevie you are going to love your room. Your Mommy and Daddy have been working very hard to make it just perfect for you. You are going to have the most amazing life. A very rich and blessed life. XOXOXOXO
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